Thank You: Jan & Tom
Jan is a dear friend that Robbi met (via a "Sclero" message board), and continues to stay in touch with.
In our journey to understand Scleroderma, Jan communicated with Robbi, on a daily basis, as her husband, was receiving stem cell treatment - 2 years ago. Tom did not survive the treatment phase. He received the early version of the SCOTS Trial (including full body irradiation). At the time he and Jan were able to find a medical team that was capable and willing to treat him, his disease was much further progressed than mine. Tom, knowing that his chances for survival were negligible, was motivated to live. He knew, too, that others would benefit from his experience in the treatment.
Today, Jan continues to provide guidance and information for many support groups from the experience of her husbands treatment. Tom was a courageous and loving husband whose memory inspires many of us to move forward with stem cell transplants & research.
I am honored by Jan's friendship, and grateful to Tom for his love of Jan, which enabled him to lead and teach many of us to follow...
David
In our journey to understand Scleroderma, Jan communicated with Robbi, on a daily basis, as her husband, was receiving stem cell treatment - 2 years ago. Tom did not survive the treatment phase. He received the early version of the SCOTS Trial (including full body irradiation). At the time he and Jan were able to find a medical team that was capable and willing to treat him, his disease was much further progressed than mine. Tom, knowing that his chances for survival were negligible, was motivated to live. He knew, too, that others would benefit from his experience in the treatment.
Today, Jan continues to provide guidance and information for many support groups from the experience of her husbands treatment. Tom was a courageous and loving husband whose memory inspires many of us to move forward with stem cell transplants & research.
I am honored by Jan's friendship, and grateful to Tom for his love of Jan, which enabled him to lead and teach many of us to follow...
David
posted by DesktopDavid at 6:35 AM
1 Comments:
David and Robbi & Family - while you are so appreciative of the people who have touched your lives, I don't know if you can even imagine how you have touched our hearts - all over the country. We all have tears of joy running down our cheeks. We are so appreciative of you for sharing this with us and so very very glad for the wonderful outcome. You have also taught us how to face adversity with the right mix of attitude, research and humor. I am so inspired and impressed by both of you. Be well.....April05
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