DAY 7 - 010207
My word for today is Neutropenic – meaning lack of white blood cells and hard to fight infection. That’s what David is, thus the cold he has. And this cold won’t let go. They’ll be checking him out tomorrow and it just feels good to know he’s in their hands. No fever or any other danger signs so we’re okay. It was a very wise thing to put him on an anti-biotic. I got him out for some fresh air today. He has a new satellite radio to program so it’s easy to persuade him out the door. He bundles up and plays with his new toy while I run a few errands. David is an easy patient as long as he has his toys. We had cheeseburgers tonight for dinner from Ruby Tuesdays. I couldn’t believe David was in the mood to eat that so I couldn’t pick them up fast enough.
As you can see my inventory of “Healing Shawls” is growing fast. They’re working for me already! My hand is a little cramped but my mind is calm! Having HBO and Cinamax is catching us up on movies that we haven’t seen. The good news is we haven’t seen most so we have lots more to catch up on.
Meanwhile we’re so very excited to see Jayme in 4 days 3 hours and 22 minutes!!!!! Very soon the 4 of us will be under 1 roof and nothing could fill our hearts more than that.
I hope everyone made it back to school/work okay and all is well. I miss you all very much. G’nite for now.
As you can see my inventory of “Healing Shawls” is growing fast. They’re working for me already! My hand is a little cramped but my mind is calm! Having HBO and Cinamax is catching us up on movies that we haven’t seen. The good news is we haven’t seen most so we have lots more to catch up on.
Meanwhile we’re so very excited to see Jayme in 4 days 3 hours and 22 minutes!!!!! Very soon the 4 of us will be under 1 roof and nothing could fill our hearts more than that.
I hope everyone made it back to school/work okay and all is well. I miss you all very much. G’nite for now.
[Geek Update: The weak link in this process is me. I try to get Robbi's updates posted the same nite that she writes them so we are in real-time. However, I didn't have the focus of thought last nite. You can see that this didn't get up on board till mid-day the 3rd. I can only imagine that as I get deeper into this process I'm likely to fall further behind. Don't worry. If anything becomes really bad, I'm sure the word will get out to all of you soon enough.]
[Patient Update: It was a rough nite. My cough became more of a cold-cough and my temp rose to 99.7 about 4am. We considered calling the hospital. They told us to watch for signs of infection and if my temp rose over 100. We expected to go in this morning to get a quick check, but when I got up arount 6:30 the temp was down and my cough eased a bit. I'm glad we didn't over react. You get so worried that you don't want to miss a sign that should have been responded to and still not be a Chicken Little. As I've said - I'm a baby, and I know it.
I got up and bathed myself again and it always feels better after that. The activity makes me cough more but it is a Sclero-cough which I've lived with for 2+ years. It's easier to deal with it now be cause we are doing something about it.
So, here is one of rare pics of me in my hotel room -
You can see the essence of my existence (except that Robbi isn't in view) - laptop, a drink, the fridge/freezer and my TREO is charged and ready for your calls! Just remember, that if it goes to voicemail, it may be a while before I get back to you. A message now and then is nice to listen to...
Today, I have an appt. to get my lines flushed. Stay tuned... film at 11...]
~ Robbi
2 Comments:
I'm truly amazed in your journey. My mother suffers from Scleroderma and Rhynauds disease. Each year it gets scarier and scareier to watch the symptoms take over our lives.
Please contact me via email - desktopdavid@gmail.com
I need to know more of what you an you mother are going through. You are not alone... please come forward. It will be private.
David
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